Living with seizures can be hard. But it can also be hard for people who care for those with seizures.
If you care about someone who has seizures, it is important for you to learn what you can do to help. Some people need more help. Others need less. Be sure to talk openly about what kind of help is needed.
- How you can help those you care for
- What you can do when a seizure happens
- When you should call for emergency help
- What to discuss with the doctor
- How you can care for yourself
How you can help those you care for:
- Take note when seizures happen to see if there are certain triggers
- Help them take medication for seizures as the doctor told them
- Go with them to doctor appointments
- Go with them to social and leisure activities
- Drive them to places they need to go
- Help make their homes safe
- Talk through ways to help them stay healthy and lower stress
What you can do when a seizure happens:
- Stay close by
- Remain calm
- Watch the clock to see how long the seizure lasts. If it’s more than 5 minutes, dial 911
- Clear items from around the person to keep them safe
- Try to make the person comfortable
- Don't try to hold the person down or still
- Never put anything in the person’s mouth
- Check for normal breathing
- Don't give anything to eat or drink until the seizure is over
- Note what happened before the seizure to see if it’s a trigger
When you should call for emergency help:
- The seizure is longer than 5 minutes
- Seizures happen one after another
- Breathing is not normal
- The person is in water when the seizure starts
- If the seizure causes the person to get hurt
- If the person asks you to call for help
What to discuss with the doctor:
Some people take medication, but still have seizures. If that is happening for your family member or friend, talk with the doctor. Better seizure control may be possible.
Many medications treat seizures. The doctor may decide that taking FYCOMPA® with other seizure medication could be a good option. You can start by having the person you care for complete these questions.
Ask the doctor about side effects. Medications for seizures, including FYCOMPA, may cause suicidal thoughts or actions. Pay attention to any changes, such as sudden changes in mood, behaviors, thoughts, or feelings. Call the doctor between visits if you see any of these signs. Learn more about possible side effects of FYCOMPA.
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How you can care for yourself:
You care for someone else. But you need to take care of yourself, too. Having a healthy mind and body makes you the best caregiver you can be.
- Don't take on too much at once
- Reach out to others for support
- Stay healthy with exercise, food, and sleep